I have always felt different, which I attribute to my disabilities. I have low vision, which I recently found out is due to a rare genetic disorder called MEPAN but I spent most of my life being undiagnosed. I also have Ehlers Danlos Syndrome which effects my walking and physical activity. I feel that I am alone, because these disabilities are so rare on their own, but to have both together is almost unheard of, and I feel that no one quite understands my struggles.
Around the holiday season, being Jewish and celebrating Chanukkah has also made me feel different. In Los Angeles, most of the stores where people would buy decorations and food for Christmas have a very limited selection of Chanukkah decorations. Chanukkah always seemed to take a backseat to Christmas.
Five years ago, I went on a Birthright trip to Israel during Chanukkah. Israel, felt like a paradise. There are town squares with giant menorahs and shops with displays full of jelly donuts. Chanukkah there is like Christmas here. For the first time I did not feel different at this time of year for being Jewish. Interestingly, I also did not feel excluded or separated due to my disability. [continue reading…]