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Lois Curtis smiling

Lois Curtis

People with intellectual and mental disabilities can thank Lois Curtis for paving the way for them to live in the community receiving the services they need.

In what was called “the most important decision for people with disabilities in history,” the Olmstead Decision justified the right for people with disabilities to live independently but would take four years to come in effect including being heard in the Supreme Court.

At the center of the 1999 lawsuit that cited a violation of the Americans with Disabilities Act of 1990 were Lois Curtis and Elaine Wilson, two women with mental and intellectual disabilities. They were held in Georgia Regional Hospital for years after their treatment team determined they were able to live in the community because the state did not want to give them the funds they needed to live independently.

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Simone Biles speaking at a podium wearing an orange blazer and white shirt

Simone Biles

Simone Biles is known widely as the Olympic champion who dominated the sport of gymnastics during the 2016 Rio Olympics. Biles has won four consecutive all around titles and is the first female to do so since the 1970’s. She also has competed and won 14 world championship medals.

At a young age, Biles was diagnosed with Attention Deficient Hyperactive Disorder (ADHD). Confidential medical records were revealed to the public around the time she was competing in the 2016 Olympics. Since being vocal regarding her ADHD, many have classified her as a hero, especially those who have endured stigma from the disability. She has taken to Twitter vocalizing her disability and what she has been doing to treat her ADHD.

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Clarence Page headshot wearing black suit, white shirt and glasses

Clarence Page

Clarence Page is a highly accomplished journalist. He is a Pulitzer-winning syndicated columnist for the Tribune network, a member of the Chicago Tribune’s editorial board, a regular contributor to The News Hour with Jim Lehrer and has appeared on The McLaughlin Group, NBC’s The Chris Matthews Show, ABC’s Nightline and BET’s Lead Story.

He is also an African American who identifies as having Attention Deficient Hyperactive Disorder (ADHD), which can affect basic functioning due to hyperactivity and a pattern of inattention. Page has been outspoken about having ADHD and educating people about his disability.

One-in-five Americans has a disability, and polls show that most of them want to work. Yet 70 percent of working-age Americans with disabilities are outside of the workforce. There are 5.6 million African Americans with a disability in the United States. Only 28.7 percent of African Americans with disabilities are employed in the United States compared to 72 percent of African Americans without disabilities.

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Claudia Gordon standing in front of two flags, smiling.

Claudia Gordon

Claudia Gordon is recognized as one of former President Barack Obama’s key advisors for disability issues. She was also the first female deaf African American lawyer to graduate law school and pursue a career devoted to helping individuals with disabilities. Today she works in a senior role at Sprint, a company with many accessibility features that enable people who are deaf to communicate.

At the age of eight, Gordon began to develop severe pain in her ears, which resulted in her becoming permanently deaf. She faced discrimination in her own home country of Jamaica and realized she could not stay there, so she attended high school and college in America. By junior year of high school, she knew being a lawyer was the career she wanted to pursue. Gordon never let doubt or fear be a hindrance in her life. She made the best out of her disability and prospered. 

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A portrait of Harriet Tubman

Harriet Tubman

Harriet Tubman is known as one of the most influential leaders of our nation. She was a former slave turned abolitionist who bravely risked her life to free both slaves and her own family members through the underground railroad.

Tubman was a Maryland native. She was born around 1820 in Dorchester, County, Md. Her mission was getting as many men, women and children out of bondage into freedom.

When Tubman was a teenager, she acquired a traumatic brain injury when a slave owner struck her in the head. This resulted in her developing epileptic seizures and hypersomnia. Unfortunately, Tubman’s experience of violence occurred on a daily basis which made her brain injury worse.

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Chandra Wilson in costume as Grey's Anatomy's Dr. Miranda Bailey

Chandra Wilson as Dr. Miranda Bailey

Grey’s Anatomy has never been a show to shy away from social commentary. In the era of #MeToo and the focus on gender inequality, Dr. Miranda Bailey (played by Chandra Wilson) fights for herself when she is having a heart attack – and shatters stigma against Obsessive Compulsive Disorder (OCD).

OCD is a common, chronic and long-lasting disorder in which a person has uncontrollable, reoccurring thoughts (obsessions) and behaviors (compulsions) that he or she feels the urge to repeat over and over.

Bailey, a Chief-of-Surgery, is at another area hospital with symptoms of a heart attack. The doctor treating her, Dr. Maxwell, does not believe she is and instead asks about emotional and mental stressors in her life. While there are many, Bailey is adamant she truly is having a heart attack – and is correct. But Dr. Maxwell continues to refuse the cardiac stress test that she requests.

The interactions between Bailey and Maxwell illustrate how women and men often are treated differently by medical professionals. Bailey is not only belittled as a woman but also when she discloses she has a disability. She shares that she is taking statins and anti-depressants to manage her OCD.

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Donna Meltzer with RespectAbility staff and Fellows in front of the RespectAbility banner

Donna Meltzer with RespectAbility staff and Fellows

Rockville, Maryland, Feb. 6 – As the current CEO of the National Association of Councils on Developmental Disabilities (NACDD), Donna Meltzer has done much to advocate for community-living and independence for people with intellectual and developmental disabilities. Speaking to the Spring 2018 Fellows, Meltzer talked about Developmental Disabilities (DD) Councils and their role in advocating for independent living and choice where and with whom to live.

Meltzer’s career allowed the Fellows a peek into how she became so passionate about disability and choice for people with developmental disabilities. She started off working as a staffer for the Honorable Tony Coelho (CA-D) who introduced her to disability advocacy. After her stint on Capitol Hill, Meltzer became the Senior Director of Government Relations for the Epilepsy Foundation and the Director of Legislative Affairs for the Association of University Centers on Disability. Even now, as CEO of the NACDD, Meltzer still finds time to be a part of multiple coalitions like the Coalition for Health Funding. She recently stepped down as chairwoman of the Consortium of Citizens with Disabilities. [continue reading…]

Headshot of Daymon John in grayscale with text: #RespectTheAbility, “I see the world in a different way than most people and for me, that’s been a positive thing.” - Daymond John, Black History Month 2018

“I see the world in a different way than most people and for me, that’s been a positive thing.” – Shark Tank star and businessman Daymond John, who has Dyslexia

View 2021 Release: https://www.respectability.org/2021/02/black-history-month-2021.

Rockville Md., Feb. 5 – As we celebrate Black History Month, which takes place every February, RespectAbility recognizes the contributions made and the important presence of African Americans to the United States. It is important to note this includes more than 5.6 million African Americans living with a disability in the U.S., 3.4 million of which are working-age African Americans with disabilities. Therefore, we would like to reflect on the realities and challenges that continue to shape the lives of African Americans with disabilities.

Only 28.7 percent of working-age African Americans with disabilities are employed in the U.S. compared to 72 percent of working-age African Americans without disabilities. This is in line with the rest of the country, with fully one-in-five Americans having a disability and just 30 percent of those who are working-age being employed, despite polls showing that most of them want to work. This leads to approximately 40 percent of African Americans with disabilities living in poverty compared to 22 percent of African Americans without disabilities.

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headshot of Haben Girma wearing a blue dress and pearls

Haben Girma

Haben Girma has been advocating for herself since she attended elementary school in Oakland. She became the first Deafblind person to graduate from law school when she earned her degree from Harvard Law School in 2013. She is a civil rights attorney who advocates for disability rights, a public speaker who travels the country changing people’s perceptions of the disability community in the media and has been featured in Forbes “30 Under 30” and on NBC and NPR.

In 1983, five years before Girma was born, her mother Saba Gebreyesus fled Eritrea, a city in Africa with approximately six million people, taking two weeks to walk to Sudan and sleeping in trees “surrounded by hungry hyenas.” But she was determined to give Girma the opportunities her son wasn’t given; he also was born deafblind.

After her mom settled in California, Girma was born in Oakland in 1988. In elementary school, she learned Braille and later used a Bluetooth keyboard hooked up to a Braille reader to communicate with others. At school, she gained access to the materials she needed to be able to learn. She credits her supportive teachers and classmates, accessible materials such as interpreters and other accommodations, and developed study skills and homework strategies for her success.

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Diana Elizabeth Jordan smiling in front of a tree

Diana Elizabeth Jordan

Diana Elizabeth Jordan, an award winning actress, writer, producer and director, is an important figure in the conversation about the inclusivity or lack thereof of people with disabilities in Hollywood. She found a way to get into and around Hollywood, with the help of her faith and self-confidence.

“There have been plenty of times in my life where I haven’t felt positive but I try my best to let the positive outweigh the negative and I think my faith in God has a lot to do with that,” said Jordan.

Jordan has cerebral palsy, which mildly affects her speech and gait. She has been acting professionally since she graduated from college. She began her career working in Chicago Theater. She also was the first actor with a disability to obtain Masters of Fine Arts in Acting from California State University Long Beach in 2001.

Since beginning her career, Diana has built an impressive list of over 40 credits in theater, film and television including her first T.V. guest star role on The WB’s 7th Heaven in 2004. The majority of roles she has been cast in have not been disability specific. It has always been important to her to be cast in roles where her disability is incidental to the character or storyline.

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