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Rockville, Maryland, May 9 – I watched Lauren struggle at work. She had poor social skills. She talked obsessively about roller coasters and her siblings’ engagements and subsequent weddings. She had trouble understanding other people’s emotions. She didn’t look at you when you spoke to her. She was very sensitive to loud noises; she had to be warned of fire drills and left the area ahead of everyone else. She had trouble expressing what she needed. She flapped her hands when she struggled to articulate what she was trying to say. Her sense of touch was poor; she couldn’t tell when clothes were damp or dry. Most distressing, she rarely received credit for her hard work; only her mistakes were recognized and never forgotten. She was treated unfairly. She was too smart for her own good. She had been a laundry aide for nine years. Lauren has Asperger’s syndrome, which is an autism spectrum disorder (ASD). She overcame adversity by trying her best and being herself.

Freddie Highmore as Dr. Shaun Murphy in a labcoat

Freddie Highmore as Dr. Shaun Murphy on ABC’s “The Good Doctor”

I thought that because I have a disability and had family members who have disabilities, that I understood all disabilities. That is not true. I did not understand why Lauren was making inappropriate comments, not listening to understand what I was trying to say and making my day harder than it needed to be sometimes. I did not know why she was behaving the way she did. I would not understand any of her behaviors until I watched ABC’s “The Good Doctor” and I saw Freddie Highmore’s Dr. Shaun Murphy behave in the same manner. [continue reading…]

Lenny Larsen with RespectAbility staff and Fellows in front of the RespectAbility banner

Lenny Larsen with RespectAbility staff and Fellows

Rockville, Maryland, May 4 – As a National Leadership Fellow, I have had the opportunity to hear from guest speakers throughout my semester with RespectAbility. One of our most recent guests, Lenny Larsen (an internationally recognized producer and director from Los Angeles), provided particular inspiration and advice for my life.

Larsen is a man of many talents. While serving as the executive producer/creative director for theme park projects throughout the world, he simultaneously was maintaining a second career as an internationally competitive springboard and platform diver with eyes focused on 2016 Olympic trials. Then the unthinkable happened. A trampolining accident resulted in a catastrophic spinal cord injury, rendering him paralyzed from the neck down and dependent on a ventilator to breathe. [continue reading…]

Ads Feature a Diverse Group of People with Disabilities

Rockville, Maryland, April 26 – A new series of PSAs is breaking ground on ensuring philanthropists are inclusive of people with disabilities. Representing a diverse group of people with disabilities, the stars speak directly to the camera in their own words.

There was no script for the ads, only honest conversations with members of various disability communities. Participants in the ads include people who are deaf, blind, wheelchair-users or amputees or have Autism, learning differences or another disability. They include people who are African American, Hispanic, Latino, Asian, white and other backgrounds and are diverse in sexual orientations and identities. Participants communicate both verbally and with American Sign Language. The ads have captions, which is vital to 50 million Americans who are Deaf/Hard of Hearing.

The ads, focusing on inclusive philanthropy, along with free resources, are viewable at: www.respectability.org/inclusive-philanthropy. RespectAbility, the creator of the ads, is an education and advocacy nonprofit fighting stigmas and advancing opportunities for people with disabilities. More PSAs that focus on other disability-related topics will be released in the coming weeks.

The people with disabilities in the ads represent the 56 million Americans who live with some sort of disability and exemplify why philanthropists need to include people with disabilities in boards, staffs, grantmaking and more.

[continue reading…]

Eleanor Clift and RespectAbility's Spring 2018 Fellows

Eleanor Clift and RespectAbility’s Spring 2018 Fellows

Rockville, Maryland, April 18 – In a visit to RespectAbility’s office Eleanor Clift spoke to the National Leadership Fellows about the current administration, growing up during the Civil Rights Movement and race-related issues.

Clift is a well known columnist for The Daily Beast and an author; she was previously a reporter at Newsweek for 50 years of her life. She also has appeared in many movies and is a board member of RespectAbility. [continue reading…]

RespectAbility and Norman Lear Center Unite to Help Hollywood Include People with Disabilities

HH&S' Director Kate Folb in between RespectAbility's President Jennifer Laszlo Mizrahi and Communications Director Lauren Appelbaum, all standing and smiling, in front of a picture of Norman Lear

HH&S’ Director Kate Folb in between RespectAbility’s President Jennifer Laszlo Mizrahi and Communications Director Lauren Appelbaum

Los Angeles, Calif., April 18 – RespectAbility, a nonprofit organization fighting stigmas and advancing opportunities for people with disabilities, announces a new partnership with Hollywood, Health & Society (HH&S), a project of the USC Annenberg Norman Lear Center. The partnership will help educate, inform and support the success of the movie/TV industry in its work to ensure that people with disabilities are included on both sides of the camera in the stories that Hollywood tells. HH&S provides entertainment industry professionals with accurate and timely information for storylines on health, safety and national security. Like RespectAbility, HH&S recognizes the profound impact that entertainment media have on individual knowledge and behavior – ultimately impacting society and lives at large.

“We’re delighted to be working with RespectAbility to help inform and inspire the frequency and accuracy of portrayals of people with disabilities in TV and film,” said Kate Folb, the director of HH&S.

HH&S offers several resources, including quick facts, briefings and consultations with experts, case examples, panel discussions about timely health issues, a quarterly newsletter with health updates called Real to Reel and an expanding list of tip sheets written specifically for writers and producers. The broad range of topics includes disability-specific topics autism and mental health. Some of the TV shows they have assisted include The Fosters, The Good Doctor, Grey’s Anatomy, Orange Is the New Black, Speechless, Switched at Birth and many more.

The creation of this partnership would not have been possible without the financial support of The California Endowment. “Visibility and representation matters,” said Jose L. Plaza, who manages the grant for The California Endowment. “We know that accurate and positive portrayals of diverse people with disabilities will not only empower and educate viewers and program creators but will ultimately lead to a more inclusive, responsive and healthier society.”

[continue reading…]

RespectAbility Board Member Dana Marlowe and RespectAbility Fellow Eric Ascher smiling in front of the RespectAbility banner

Dana Marlowe and RespectAbility Fellow Eric Ascher

Rockville, Maryland, April 12 – “Nine years ago this week.”

For Dana Marlowe and her staff at Accessibility Partners, those five words are cause for celebration. Over the past nine years, Accessibility Partners has advised clients big and small, in the government and in the private sector. The Kennedy Center, the U.S. Department of Labor, Amazon, Coca-Cola, Dell, Intel and LinkedIn all have turned to her team for advice on how to make their websites and software accessible to the one-in-five Americans with a disability. [continue reading…]

Geoffrey Melada with RespectAbility Staff and Spring 2018 Fellows in front of the RespectAbility banner

Geoffrey Melada with RespectAbility staff and Fellows

Rockville, Maryland, April 10 – In his third time speaking to RespectAbility’s National Leadership Fellows, Geoffrey Melada, Director of Communications for Hillel International and a former journalist and trial lawyer, said the key to building a successful brand is storytelling.

The same goes for companies as for individuals. Melada told the Fellows that everyone in the room had something in common: being brand ambassadors for RespectAbility and our interest in disability inclusion. [continue reading…]

Aaron Dorfman with RespectAbility staff and Fellows in front of the RespectAbility banner

Aaron Dorfman with RespectAbility staff and Fellows

Rockville, Maryland, March 20 – Aaron Dorfman, the President and CEO of the National Committee for Responsive Philanthropy (NCRP), visited RespectAbility to talk about integrity and transparency in philanthropy, its benefits, and how to make it diverse and inclusive. NCRP is a research and advocacy organization that makes sure grantmakers are responsive to the needs of those with less opportunity.

Dorfman speaks and writes on diversity, equity, inclusion philanthropy, accountability in the philanthropic sector and the benefits of advocating for community organizing. He has 15 years of experience as a community organizer, a BA in Political Science from Carleton College, and a MA in Philanthropic Studies from Indiana University. He is also a Board Member of The Center for Popular Democracy. [continue reading…]

Los Angeles, Calif., March 20 – As entertainment professionals across all platforms work to become more inclusive of minorities, RespectAbility, a nonprofit organization that fights stigma and advances opportunities for people with disabilities, announces the launch of “The Hollywood Disability Toolkit: The RespectAbility Guide to Inclusion in the Entertainment Industry.” The toolkit, which is available online for free, offers Hollywood professionals the facts and sources they need to get disability inclusion right.

The Hollywood Disability Toolkit: The RespectAbility Guide to Inclusion in the Entertainment IndustryA first of its kind primer for entertainment professionals, it covers a wide array of key issues all in one easy to read place. A Disability FAQ covers topics from the Americans with Disabilities Act (ADA) and the definition of a disability to concrete steps to ensure inclusivity and sample inclusion language. The FAQ also covers resources for hiring employees with disabilities and tax and other incentives that employers have to hire people with disabilities.

[continue reading…]

An adult finger holding the hand of a baby that is lying down on a blanket.

Washington, D.C., March 19, 2018 – The John D. and Catherine T. MacArthur Foundation joined a small cadre of exceptional champions for inclusion and equality by awarding $145 million in grants to groundbreaking projects that will include people with disabilities equally in their work. MacArthur’s initiative, 100&Change, asked grant applicants – no matter their sector or project goals – to review a series of questions and a check list to ensure the inclusion of people with disabilities in multiple aspects of the grant recipients’ proposed projects. Never before has a grant program anywhere near this size asked grantees to address how they plan to ensure access to benefits for persons with disabilities.

The Rice 360° Institute for Global Health (Rice University) received $15 million to prevent newborn babies in Africa from dying. Indeed, every year, 1.1 million newborns die in Africa alone, mostly from preventable causes — pre-term birth, complications of labor and delivery, and infections. The grant from MacArthur will enable Rice and their partners to providing quality, comprehensive hospital care during birth, labor, and the first weeks of life with a goal of reducing newborn deaths in certain areas by 75 percent.

RespectAbility had the opportunity to ask the winners of the grants about how they ensured their project will include people with disabilities as equals. Professor Maria Oden, a Professor in the Practice of Engineering in the Department of Bioengineering at Rice’s George R. Brown School of Engineering and Director of the Oshman Engineering Design Kitchen at Rice University and co-director of Rice 360°: Institute for Global Health, gave us her insights: [continue reading…]

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