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Cami Howe smiling, leaning back in her wheelchairIt was a crisp, chilly autumn afternoon in Logan, Utah. I was wheeling myself (I’m an ambulatory wheelchair user) to my doctorate-level Social Psychology class (as an undergraduate, by the way. #humblebrag 😉), rocking out to an odd yet entertaining mixture of Linkin Park and Disney songs through my earbuds.

“Hakuna matata!
What a wonderful phrase!
Hakuna matata!
Ain’t no passing” —-

My head snapped back. My wheels would not move. I was a dog on a leash that had gone too far ahead of its owner. Stunned, I turned my head to see what – or who – was pulling me back. A tall, white male college student with sandy blonde hair stood there with the biggest grin on his face. [continue reading…]

Honoring Women with Disabilities During Women’s History Month

Janet LaBreck smiling in front of an American flagJanet LaBreck is a pinnacle of change for people with disabilities. Having served as the first African American Commissioner for both the Rehabilitation Services Administration (RSA) as well as the Massachusetts Commission for the Blind, she has extensive knowledge of the political sphere. LaBreck overcame significant odds to become a wildly successful pioneer of change. 

LaBreck first noticed her gradual loss of vision as a child when she started having difficulty seeing at night, reading the blackboard and her school textbooks. She would struggle to read aloud in class, sometimes “[guessing] the next word, which usually turned out to be incorrect.”

Teachers initially perceived this as a behavioral issue rather than the onset of LaBreck’s declining vision. When a teacher realized that LaBreck might be having trouble seeing rather than acting out, she went for a vision exam. It took two years for her and three of her siblings to be diagnosed with retinitis pigmentosa (RP). LaBreck contends that acceptance of her disability was a long journey lasting from childhood to adulthood. After learning skills that enabled her to perform tasks in non-visual way and meeting people who also were living with vision loss, she was able to accept her disability. [continue reading…]

Tatiana Lee in a wheelchair wearing a pink jacket smiling

Courtesy of Zappos Adaptive styled by Stephanie Thomas

I wanted to be a model since I was a little girl. I grew up to be one. I know it sounds like a very vain profession, but it means the world to me and let me tell you why it is essential.

In American society, the emphasis we put on beauty for a woman is more than the pressure we put on men. We have to feel like we are beautiful all the time. We have to wear makeup, have our hair done, keep up with the trends and the list goes on. Society views women as objects to admire. It should not be that way, but that is the world in which we live.

The fashion and beauty industry is a multi-billion-dollar industry on its own. Mass media shapes that for us. Whatever is in the latest magazine or on the runway ends up being the trend to follow. Media develops everything we do as a culture. [continue reading…]

3,000+ Experts from 70+ Countries Involved

Washington, D.C., March 27 – RespectAbility, a United States based nonprofit organization fighting stigmas and advancing opportunities for and with people with disabilities, was recognized for “Innovative Practice 2019 on Independent Living and Political Participation for People with Disabilities” at the United Nations in Vienna, Austria.

The prize is for RespectAbility’s work in fighting stigmas through Hollywood and job creation for people with disabilities. Fully 1-in-5 people on earth (1.2 billion people) live with some form of disability. Since 2013, RespectAbility has been enabling people with disabilities to achieve economic independence by increasing positive and accurate representation of people with disabilities in Hollywood and the news media, encouraging best practices in employment and training young leaders with disabilities.

RespectAbility has created the Hollywood Disability Inclusion Toolkit and enhanced the Emmy Award-winning TV show “Born This Way,” starring diverse people with Down syndrome. By promoting employment opportunities, the organization collaborates with Hollywood writers to promote positive, accurate, and diverse portrayals of disability. RespectAbility also focuses on employment by publishing reports on best practices, providing testimony, and creating resources for policy makers. At the political level, RespectAbility has candidate questionnaires and nonpartisan voter guides in all 50 U.S. States. [continue reading…]

Honoring Women with Disabilities During Women’s History Month

Lori Golden smiling, sitting on a black leather chairLori Golden is committed to advancing opportunities for people with all abilities in the workplace, from serving on several nonprofit boards and working as a strategy leader for the accounting consultant firm Ernst & Young (EY).

Self-Advocate with Non-Visible Disabilities on Disclosing at Work

Golden is a self-advocate for people with disabilities. She has what many call “invisible disabilities,” but Golden prefers to refer to them as non-visible.

“To me the term invisible carries tones of kind of purposeful concealment or hiding, and there’s obviously no shame and no reason to hide,” Golden said, who also is the mother of young adults with non-visible disabilities.

She acquired her disabilities later in her life – starting in her 20s. Golden asserts the importance of “sharing as much information as you need to” regarding one’s disability in order to achieve desired outcomes. Sharing just enough, she says, ensures that one does not appear not to meet expectations. [continue reading…]

Selma Blair is an American actress who is best known for Cruel Intentions, Legally Blonde, the Hellboy series and the show “Zoe, Duncan, Jack and Jane.” She also has an active life in fashion. Blair has worked with fashion icons such as Chanel, GAP, designers Marc Jacobs & Christian Siriano, and magazines such as Vanity Fair, Glamour and Vogue.

Selma Blair in front of a white backgroundIn August 2018, Blair was diagnosed with multiple sclerosis. She announced it on Instagram the following October. “I am disabled,” she posted. “I fall sometimes. I drop things. My memory is foggy. And my left side is asking for directions from a broken GPS. But, we are doing it. And I laugh and I don’t know exactly what I will do precisely. But, I will do my best.”

Multiple sclerosis affects between 850,000-915,000 people in the United States. It affects women three more times than men. It can appear in any age, but it is more common among people as young as 20 and as old as 60 for when they are diagnosed. Moreover, it is not uncommon for people to get disabilities later in life. As of 2002, 25.2 percent of adults acquired their first disability between the ages of 45 and 64. Between seven and nine percent of those who first inquire disabilities are children. Common disabilities include musculoskeletal injuries, cancer (70,000 people between 20-40 each year), depression, heart problems and nerve system disorders (200,000 people before 65), such as multiple sclerosis. [continue reading…]

At its heart, Happy Face is a film about a teenage boy, Stan (Robin L’Houmeau), attempting to reconnect with his mother who is dying from cancer. His mother, who often manipulates Stan, feels a sense a loss of self-worth when she loses her beauty due to cancer treatments. In a misguided attempt to learn how she feels, Stan deforms his face with bandages and joins a therapy workshop for patients with facial differences.

While the film, which screened at the 2019 Slamdance Film Festival, shines a spotlight on the lives of many individuals with facial differences, Stan’s relationship with his mother remains a major theme – making this a film not about disability or just for people with disabilities but a film about important family dynamics that is relatable to everyone.

Stan’s bandages are a metaphor for his own pain and confusion over how to react to his mother’s declining health. When he is discovered for being a handsome individual with no facial scarring, he convinces the group members to let him help them face their fears beyond the physical issues. Yet Stan is not allowing himself to do the same. Ultimately, his new support group helps him do so. [continue reading…]

At Beit Issie Shapiro, joy is present every day – this is our protest to a world that views disability through the lens of helplessness and suffering.

Beit Issie Shapiro, tucked away in Ra’anana, Israel, is a leading pioneer of innovative therapies and services to improve the lives of people with disabilities, impacting on almost half a million people annually in Israel and worldwide. Beit Issie Shapiro develops new therapies, changes attitudes in society, advocates for better legislation and shares knowledge internationally through its research and training.

It also pioneered Israel’s first early intervention center; the first hydrotherapy program for children with developmental and physical disabilities; the provision of specialized dental care; and unique Snoezelen multi-sensory environments for children with autism and other sensory issues. For many years its dedicated professional team has changed lives of people with disabilities while reaching out and supporting families in an atmosphere of warmth, love and respect. [continue reading…]

Rockville, Maryland, March 21 – I did not realize that March was the month for me. I mean, March already has a personal connection to me. My father passed away on the 19th two years ago of cancer. March was supposed to be my birth month until doctors decided to kick me and my three roommates (I am one of four quadruplets) out of my mom at 31 ½ weeks (You don’t know what being claustrophobic mean unless you are squished by the siblings to the point where you can’t grow normally 😊). No, it turns out that March is both National Women’s Month and National Cerebral Palsy Month. So, because I have cerebral palsy, I have my personal National Minority Month. As I celebrate my gender and my disability, what does it to mean to be disabled and female? [continue reading…]

Honoring Women with Disabilities During Women’s History Month

Image of Maya Angelou from around 1970, black and white photo of her face looking to the side

Maya Angelou

Maya Angelou was an award-winning author, poet, civil rights activist, college professor and screen writer. Most recognized for her literary works, Angelou was and remains among the most influential woman of her time. After passing away in 2014, Angelou still is widely remembered and honored for her hard work and perseverance over decades.

As a child, Angelou was sexually abused and raped by her mother’s boyfriend. She told her brother, who told the rest of their family. While the boyfriend was found guilty, he was jailed for just one day. Four days later, he was murdered, with the theory that Angelou’s uncles did so. As a result, Angelou became mute for almost five years. [continue reading…]

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