News

Jessica Hetzel and Ava Xiao-Lin Rigelhaupt

At an event at the Jewish Community Center in Detroit on March 10, Ava Xiao-Lin Rigelhaupt, a writer, consultant, actress, speaker, and advocate for disability and autism representation, discussed her story and her work on the Broadway musical “How to Dance in Ohio.” The event, organized by The J’s Opening the Doors program, was in celebration of Jewish Disability Awareness, Acceptance, and Inclusion Month (JDAIM).

Ava identifies as a Chinese, transracial, Jewish, autistic adoptee. She shared her experiences of intersectional identities and how that affected her career in the entertainment industry. In Ava’s speech, she briefly touched on her experience of being diagnosed and how she managed it. Ava’s discussion of her multiple identities left the audience with a lasting impression of the importance of inclusion and belonging among various communities. [continue reading…]

Frank Liang

Supplemental Security Income (SSI) is a federal assistance program that provides financial help to low-income disabled individuals and those older than 65. SSI was created after President Richard Nixon signed the Social Security Amendments of 1972 and officially went into effect in 1974. The amount an individual receives depends on their level of income and the resources they have available, such as money in their bank accounts.

Although SSI does help many people who are disabled or elderly, it puts a stranglehold on their economic and professional advancement. Individuals who receive SSI are not allowed to have more than $2,000 in assets at any given time. If two people who receive SSI get married, instead of them each being allowed to have $2,000 in assets, they as a couple are only allowed to have $3,000 combined. This puts a strain on many people’s livelihoods, and makes it more difficult for people wanting to transition out of SSI, save money, or get married.

When SSI was first passed in 1974, the original asset limits were $1,500 for individuals and $2,000 for couples. They increased to the current limits in 1989 and have not changed since. Thanks to inflation, everything from housing to food has gotten more expensive in the past 35 years, and so these limits make it difficult for people like me to save money and live independently. [continue reading…]

Millions of low-income people with disabilities and older adults receive Supplemental Security Income (SSI) each month. For these recipients, SSI is a vital source of income that pays for rent, food, transportation, and other living expenses. However, people who receive SSI are trapped in a cycle of enforced poverty. To receive SSI, an individual may have no more than $2,000 in savings at any given time. If a person works part-time or sporadically, their income plus SSI benefits may easily put them over the $2,000 asset limit. This disincentivizes working and saving money.  If two people who both receive SSI get married, they are not each allowed to have $2,000 in assets; they are only allowed to have $3,000 between them. This is known as the “marriage penalty,” because it prevents many couples who receive SSI from getting married. The extremely low asset limits prevent low-income people with disabilities and older adults from working, saving, and getting married.

The bipartisan SSI Savings Penalty Elimination Act would increase the SSI asset limits from $2,000 to $10,000 for unmarried individuals and eliminates the marriage penalty by allowing two SSI recipients to get married and have up to $20,000 in assets as a couple. The bill also requires asset limits to be adjusted yearly to keep up with the cost of living.

How can you help?

In our efforts to ensure that this bill passes through Congress, please contact your Senators and your Member of the House of Representatives to encourage them to sponsor the SSI Savings Penalty Elimination Act. Every call and every voice make a difference!

This week, MacKenzie Scott’s Yield Giving announced RespectAbility as one of the Yield Giving Open Call’s awardees working with people and in places experiencing the greatest need in the United States.

RespectAbility is a diverse, cross-disability, and disability-led nonprofit organization that works to create systemic change in how society views and values people with disabilities, and that advances policies and practices that empower disabled people to have a better future. RespectAbility’s mission is to fight stigmas and advance opportunities so people with disabilities can fully participate in all aspects of community.

“This generous contribution from Yield Giving will enhance our ability to achieve systemic change and foster inclusion across sectors,” said Ariel Simms, President and CEO of RespectAbility. “We will be able to leverage this support to expand our reach and impact, advancing more opportunities for our community, developing future generations of disabled leaders, and creating greater shifts in societal attitudes toward disability.” [continue reading…]

Park City, January 17 – In 2020, filmmaker and disability advocate Juliet Romeo reached out to Slamdance co-founder Peter Baxter, stressing the need for a program for and by disabled filmmakers. Conversations turned to action and Slamdance Unstoppable was born. In 2021, the virtual Slamdance Film Festival included a showcase of disability-inclusive short films. In 2023, Slamdance Unstoppable, which included both short and feature films, aired both in-person and virtually. This year, all Slamdance Unstoppable films will screen in both Park City and Salt Lake City.

Uplifting and amplifying stories by disabled filmmakers is vital due to the disproportionately low representation of disability in the entertainment industry both in front of and behind the camera. In a recent study by USC Annenberg, only 1.9% of all speaking characters in the top 100 grossing films of 2022 were portrayed as disabled, an incredibly small number compared to the 27% of the U.S. population that is Disabled. By showcasing this collection, the Slamdance Unstoppable block is helping to change these statistics. [continue reading…]

Courtesy of Sundance Institute

Park City, January 16 – With one-in-five people having a disability in the U.S. today, the lack of representation – just 1.9 percent of characters in the 100 top-grossing films of 2022 and 8 percent in family films – means that millions of people are unable to see themselves reflected in media.

The 2024 Sundance Film Festival (January 18 – 28) will provide an opportunity for audiences with various disabilities to see themselves represented – both in-person and virtually.

This year, several films feature disability in the plot, including A Different Man, FRIDA, Ibelin, Out of My Mind, The Outrun, Stress Positions, Suncoast, and Super/Man: The Christopher Reeve Story, among others. [continue reading…]

On social media or TV, you probably have seen stories of a disabled person being celebrated at their High School prom, or being named an honorary member of their Football team. While these stories may seem harmless on the surface, these stories fall under the trope of “inspiration porn.”

What Is Inspiration Porn?

Inspiration Porn is used to describe the objectification of disabled people with the intention of making people without disabilities feel good. The term was made popular by Stella Young, a disabled comedian and activist, in her TED talk titled “I’m Not Your Inspiration, Thank You Very Much.” Young explained that society has been sold the lie that having a disability is a bad thing, so simply living with a disability makes someone exceptional. The media tends to glorify disabled people for existing and praise non-disabled people for helping disabled people. These superficial narratives have detrimental effects on the representation and perception of disabled people in society. [continue reading…]

As the fall semester of college wraps up, many fraternities and sororities are already starting to make plans for next semester’s Greek life recruitment. Greek letter organizations usually have a set idea of the type of people they would like to extend a bid or formal offer to become a member to. But does that fixed idea of the perfect member come with an ableist mindset?

In 2018, talks of the lack of disability inclusion in Greek life made major headlines when Ann Catherine Heigl, a George Mason University student who has Down Syndrome, was rejected from every sorority. From what the articles described about Heigl, she appeared to have several qualities that sororities look for. She was a varsity cheerleader, involved in the community, and had strong academic performance. Many students with disabilities have a similar story to Heigl’s. They are quickly judged and dismissed before they even have a chance to show who they are, just because they have a disability. [continue reading…]

It has long been a source of consternation to members of the disability community that political candidates and elected officials rarely speak publicly about issues specific to disabled voters. In fact, few politicians even address how broader issues that they do speak about impact people with disabilities. After most presidential debates, there is a predictable barrage of social media posts from disabled voters who are disappointed that the candidates never mentioned the word “disability,” let alone addressed some of the issues that impact our daily lives the most.

It turns out that the disappointment shared by disabled social media users is more widespread than many might have imagined. According to a recent poll by the think tank Data For Progress, “a majority of disabled voters don’t believe politicians care about the disabled community.”

61% of likely voters with disabilities who were polled disagreed with the statement, “Public officials and politicians care about what people with disabilities think.” Interestingly, 50% of the non-disabled voters who were polled agreed with them. This held true across party lines; 58% of all Democrats polled and 52% of all Republicans disagreed with the statement that politicians care about disabled voters. [continue reading…]