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Memories of Benly Wisdom

Ben Spangenberg smiling with headphones around his neckBen Spangenberg began as a Fellow in our National Leadership Program shortly after I started working at RespectAbility. By 2017, he was managing the National Leadership Program. Ben truly gave his all when working with Fellows. He knew personally how it felt to be discriminated against in the workplace due to a disability, and he not only fought hard to help change the landscape for future individuals but also imparted his “Benly wisdom” to more than 200 Fellows who came through the program under his tutelage. He has helped countless people learn how to advocate for themselves – especially in terms of disability accommodations. His legacy will live on in the dozens of Fellows he mentored – reviewing resumes, conducting mock interviews, and connecting them to a vast network within the disability community.

Personally, Ben was there for me when I acquired my own disability in 2018. He helped me navigate new situations, demonstrating the importance of adaptability. Prior to the COVID-19 pandemic, we would spend hours in each other’s offices, brainstorming new ideas to help to advance the next cohort of Fellows, or even to debrief after a difficult day. Ben was a support system not only to our Fellows but many of our staff as well, making going to work more like an opportunity to engage with some chosen family over just colleagues. One of my favorite memories is early on in our time together, when my daughter was about one year old and would come into the office with me two days a week. She would love to “deliver packages” to colleagues. Ben and his husband Justin would always make sure to have some scrap paper around for my daughter to pick up and bring to others around the office.

Ben put his whole self into his work for such an important reason – to help others find success in their lives. He is going to be very missed – in my family, in our work family, and the greater disability community.

Meet the Author

Lauren Appelbaum

Lauren Appelbaum is the VP, Communications and Entertainment & News Media, of RespectAbility, a nonprofit organization fighting stigmas and advancing opportunities so all people with disabilities can fully participate in every aspect of community. As an individual with an acquired nonvisible disability – Reflex Sympathetic Dystrophy – she works at the intersection of disability, employment, Hollywood and politics. She regularly conducts trainings on the why and how to be more inclusive and accessible for entertainment executives throughout the industry. Appelbaum partners with studios, production companies and writers’ rooms to create equitable and accessible opportunities to increase the number of people with lived disability experience throughout the overall story-telling process. These initiatives increase diverse and authentic representation of disabled people on screen, leading to systemic change in how society views and values people with disabilities. She has consulted on more than 100 TV episodes and films with A&E, Bunim-Murray Productions, NBCUniversal, Netflix, ViacomCBS, and The Walt Disney Company, among others. She represents RespectAbility on the CAA Full Story Initiative Advisory Council, Disney+ Content Advisory Council, MTV Entertainment Group Culture Code and Sundance Institute’s Allied Organization Initiative. She is the author of The Hollywood Disability Inclusion Toolkit and the creator of an innovative Lab Program for entertainment professionals with disabilities working in development, production and post-production. She is a recipient of the 2020 Roddenberry Foundation Impact Award for this Lab. To reach her, email LaurenA@RespectAbility.org.

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