Lily Coltoff is a Communications Fellow in RespectAbility’s National Leadership Program for Spring 2020. Born with Neurofibromatosis (NF) type 1, a genetic disorder that causes tumors to grow anywhere on or in the body – in addition to a wide range of other issues – Coltoff has spent a great deal of her life advocating for access for herself as well as for the awareness and understanding of rare conditions.