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Alex Howard is a speaker in RespectAbility’s Disability Training and Speakers Bureau. He is also an alumnus of both our National Leadership Program and our Summer Lab Program for Entertainment Professionals with Disabilities. As part of a job application, Alex was charged with writing a letter to himself before receiving his diagnosis of MePan. MePan is a rare mitochondrial disorder – Alex is only 1 of 19 people in the world who has it. The majority of the 19 people are also Jewish and a significant portion of them live in Israel.

Currently, Alex takes comfort in being able to participate in research on how to help people with this disorder. By giving blood, he gets to be in contact with other people who know what he’s going through. He is, however, doubly unique as the only person in the world who has both MePan and Ehlers Danlos Syndrome, and for most of the first 30 years of his life, he was undiagnosed. This is a letter from current Alex sent to the Alex who was struggling with the unknown. Though he started it for a job application (he is looking for opportunities in the entertainment industry), it has helped him to realize that he really has a unique perspective on life that can be of value to the entertainment industry, which is looking for unique stories. Because October is National Disability Employment Awareness Month, Alex gave us permission to share the letter in the thought that it might help others to see the value of their uniqueness.

Dear Alex,

I know it seems like life hasn’t ever been easy. Living with an undiagnosed disorder creates a lot of self-doubt. I know you feel like no one really understands what you are going through. I can’t tell you those problems will ever go away, but I can tell you there are things in the future that will make things easier to deal with. [continue reading…]

Hartford, CT, October 21 – “I am proud of the way that Connecticut has been seen as a leader in protecting the rights of people with disabilities,” said Connecticut Governor Ned Lamont in a public statement marking October as Disability Employment Awareness Month.

Gov. Lamont went on to add that he was “particularly proud of the many businesses throughout our state that make every effort to include people of all abilities as valued members of their workforces” and that the economy is “strongest when we include people of all abilities in our workplaces.” In closing he noted that “it benefits the entire economy to make sure opportunities and resources are available for everyone.”

This is an important public statement for the more than 202,632 working-age people living with disabilities in the Nutmeg State. In the economic expansion prior to the COVID-19 pandemic, Connecticut had a 42.9 percent disability employment rate. By contrast, people without disabilities had an employment rate of 79.9 percent. That means that there is a 36.9 percentage point gap in labor force participation rates between people with and without disabilities. [continue reading…]

Nelly Nieblas smiling headshot. Nieblas has a disability in her right arm.

Nelly Nieblas

Los Angeles, CA, Oct. 15 – Nelly Nieblas has been going against the grain her entire life. As a first-generation Latina with a physical disability, Nieblas was raised to be independent and speak up for herself by her family, yet she found herself consistently being met by society’s low expectations of her due to false and negative stigmas attached to her intersectional identities of being both Latinx and Disabled. Through years of hard work and exceeding those societal expectations, Nieblas has made it her life mission to not only “make the outsider become the insider,” but to ensure people with disabilities have opportunities to be fully involved in the community.

At the core of Nieblas’ policy work is her commitment to bringing more inclusion and equity to the education system. Emphasizing that a wholistic education is a key element to success, Nieblas advocates for people with disabilities to have full access to the support systems they need to complete their education and set themselves up for success to enter the workforce and have their own self-determined reality. In addition, Nieblas underscored the importance of being active members in their lives and not being dependent on the social safety net. [continue reading…]

Lincoln, NE, October 15 – Nebraska Vocational Rehabilitation, a state agency dedicated to supporting the aspirations of jobseekers with disabilities, joins other private and public sectors in celebrating National Disability Employment Awareness Month this October.

In a public statement, Nebraska VR Director Lindy Foley reiterated her state and her agency’s critical work to support thousands of Nebraskans with disabilities. “Full access to employment and community during our state’s and nation’s recovery from the challenges of the pandemic are essential,” said Foley.

This is an important public commitment for the more than 110,657 working-age people living with disabilities in Nebraska. In the economic expansion prior to the COVID-19 pandemic, the Cornhusker State had a 50.8 percent disability employment rate. By contrast, people without disabilities had an employment rate of 85.2 percent. That means that there is a 34.3 percentage point gap in labor force participation rates between people with and without disabilities. [continue reading…]

Lansing, MI, October 15 – Michigan Governor Gretchen Whitmer reaffirmed her state’s commitment “to an inclusive community that increases access and opportunities to all, including individuals with disabilities” today in a proclamation marking October as Disability Employment Awareness Month.

Gov. Whitmer also called attention to the hard work “of agencies throughout the state whose mission is to create employment opportunities for people with disabilities and raise awareness of disability employment issues.” She also reiterated the critical message that “people with disabilities…are a critical part of our efforts to build an inclusive community and strong economy.”

These are important public commitments for the more than 725,431 working-age people living with disabilities in Michigan. In the economic expansion prior to the COVID-19 pandemic, the Great Lakes State had a 36.2 percent disability employment rate. By contrast, people without disabilities had an employment rate of 78.5 percent. That means that there is a 42.2 percentage point gap in labor force participation rates between people with and without disabilities. [continue reading…]

October is National Disability Employment Awareness Month (NDEAM). As a regular reader of our Jewish Disability Perspectives newsletter, you know that RespectAbility has been training Fellows to work in the Jewish community and beyond since 2013. In honor of NDEAM, we’ve decided to celebrate some of the professional accomplishments and contributions of some of our amazing alumni. [continue reading…]

Exciting news from AMC Theatres, who will now permanently offer some Open Caption showtimes each week. According to its CEO Adam Aron, the showtimes with open captions will be well marked on AMC Theatres’ website and mobile app. These open captions will not only ensure that individuals who are Deaf/Hard of Hearing, but also those for whom English is a second language, to fully enjoy films in the theater.

“This comes from many conversations behind the scenes, and phenomenal advocacy from the Deaf and hard-of-hearing community and disability organizations like RespectAbility,” said deaf film executive Delbert Whetter, who also serves on RespectAbility’s board. “This never would have happened without the public’s tireless and relentless support for open captions screenings. Hopefully this sets a new standard for future theatrical exhibitions that paves the way for a superior, more inclusive and accessible moviegoing experience for everyone.”

More information with details on how this will work will be forthcoming soon, but this is taking place in time for the release of Eternals, in which Lauren Ridloff plays Marvel’s first Deaf superhero.

Topeka, KS, October 12 – Kansas recognizes “the skills, reliability and productivity that Kansans with disabilities brings to our workforce,” said Governor Laura Kelly in a proclamation marking October as Kansas Disability Employment Awareness Month.

Gov. Kelly also recommitted her state to an “Employment First policy, [supporting] the efforts of business leadership networks in Kansas City and Sedgwick County, [providing] support to workers with disabilities through the WORK and Work Healthy programs” as well as other service programs that help Kansans with disabilities find jobs. To that end, the state of Kansas has “created the Special Employment Supports Coordinator position to coordinate employment opportunities for people with disabilities across agencies,” and is “supporting telework for state employees as well as private sector employees that help those with disabilities continue to work at home.”

Gov. Kelly concluded that “all Kansans have a role to play in – and benefits to gain from – increasing opportunities for competitive, integrated employment for people with disabilities.” [continue reading…]

Raleigh, NC, October 8 – North Carolina must “increase opportunities for fair wages, career employment, and economic self-sufficiency for individuals with disabilities,” said Governor Roy Cooper in a proclamation marking October as Disability Employment Awareness Month.

Gov. Cooper also recommitted to “transforming state government into a model employer of people with disabilities” according to Executive Order No. 92. The order announced North Carolina as “an employment first state,” and promised North Carolinians with disabilities further access to employment, internship opportunities, job development, transition programs, and support services through the state’s vocational rehabilitation divisions and services for the blind within the Department of Health and Human Services.

These are important public commitments for the more than 682,617 working-age people living with disabilities in the Tar Heel State. In the economic expansion prior to the COVID-19 pandemic, North Carolina had a 35.3 percent disability employment rate. By contrast, people without disabilities had an employment rate of 77.4 percent. That means that there is a 42-percentage point gap in labor force participation rates between people with and without disabilities. [continue reading…]

St. Paul, MN, October 8 – “Individuals with disabilities are valuable and skillful workers, as well as productive contributors and taxpayers in the workforce,” said Minnesota Governor Tim Walz in a proclamation marking October as Disability Employment Awareness Month.

Gov. Walz’s proclamation highlighted “the decades of activism and advocacy by the disability community” which have opened doors and improve society. Additionally, the proclamation spotlighted Minnesota’s continued work on the state’s Olmstead Plan and included a commitment to provide “Minnesotans with disabilities with a continuum of work options that best meet individual needs and choices in a person-centered manner.”

This is an important public commitment for the 296,969 working-age people living with disabilities in the North Star State. In the economic expansion prior to the COVID-19 pandemic, Minnesota had a 48.1 percent disability employment rate. By contrast, people without disabilities had an employment rate of 85.3 percent. That means that there is a 37.1percentage point gap in labor force participation rates between people with and without disabilities. [continue reading…]

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